Motor Neurone Disease Association
Motor Neurone Disease Association of Victoria is the only organisation focussed on supporting people in Victoria living with MND. MND is a rapidly progressive neurological disease which causes the nerves controlling voluntary muscles to gradually fail, causing weakness, wasting and paralysis. MND varies from person to person. MND is always terminal, usually within 3-5 years, there is no remission and no active treatment. Last year the Association supported 441 people living with MND, including the loan of disability aids and equipment at no cost to the person with MND. This is a critical area of need for people living with MND as the disease takes away their mobility and can result in social isolation.
MNDAWA is a registered charity supporting people living with Motor Neurone Disease (MND), their carers and families throughout Western Australia. Motor neurone disease is the name given to a group of diseases in which the nerve cells (neurones) controlling the muscles that enable us to move, speak, breath and swallow undergo degeneration and die. At present there is no known cause and therefore no known cure for this terrible terminal disease. As a small not for profit association we rely heavily on fundraising to ensure that we can provide our members with the services that they require, as well as funds for research to find a cause and one day a cure for MND.
The Motor Neurone Disease Association is the only association in NSW/ACT working to support people living with all types of motor neurone disease, their families and carers.
The cause of MND is not known and at present there is no cure. However encouraging progress is being made by co-ordinated research across the world.
The MND association provides:
Information and support for people living with MND. This includes regular telephone contact and home visits.
Literature to assist in coping with MND on an everyday basis
An information line to assist newly diagnosed and anyone looking for additional information.
Information evenings for people who are newly diagnosed, their carers & families.
Information and education sessions for health professionals to promote the best possible care for people living with MND.
Loan equipment, including, electric wheel chairs, communication devices, electric beds, walking frames and more.
Meetings, workshops and seminars to share ideas, support one another, demonstrate equipment and share the knowledge of experts in the management for members with MND and those involved in their care.
Advocacy on behalf of people with MND to increase awareness of needs and ensure equity of access to available services and resources.
Funding for Research.
For more information on the services provided by MND please visit www.mnd.asn.au.